Thursday, June 21, 2007
I am thankful we are back from KC and we get to stay here awhile. On that same subject, I am so thankful the ID specialist in Tulsa took Kaedy's case.
I am thankful for having such wonderful kids who made a surprise stay in KC enjoyable. My children are truly a delight to me. And I am so proud of them.
I am thankful for fireflies. They are a fascinating surprise from God.
I am thankful that I have a good friend who is a nurse and she truly understands some things that no one else can. I am thankful that she is a good listener, too, and let me voice my fears without judging me.
Speaking of fears, I am thankful for the answer Dr. Carey gave me today. While in KC this last month, I heard someone refer to Kaedra as a 'terminal' case. We have never thought of her that way and haven't heard anyone say that in years. When I asked Dr. Carey about it today, he gave me the best answer I can think of: she should have a normal life span and be able to live a full life. Of course he also said 'barring any complications; infections or such' but we DO bar all that.....in the Mighty Name of Jesus. It was just good to hear him say it. We had heard the same thing in San Antonio almost two years ago, but I let fear slip in this last few weeks and I had disregarded that. I am thankful that God doesn't give up on me. ;-)
I am also thankful that Dr. Carey thinks it's okay (and good) for Kaedy to go to church, even with the picc line and machine! We haven't figured out how we're going to do it yet, but I am thankful he is wanting us to go.
I am thankful that Tuesday when Kaedra was bleeding out of her picc line, that it was fixable and did not require an ER or any other kind of hospital trip.
I am thankful for the help we have with Kaedy: our overnight nurses, our RT, our speech therapist, our picc line nurses, our doctors, TEFRA. I am thankful for the handicap parking pass we finally got - especially this week with her back on the oxygen and needing her other equipment more as well. I am thankful we got approved by TEFRA for 16 hrs a day of nursing. Now we just need to find some more nurses. ;-)
I am thankful for a Pastor that teaches The Word and how to apply it.
I am thankful for all the people who have given me curriculum suggestions (or let me look at theirs) in the past few days.
And I could keep going on and on but I need to get off the computer this morning.
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at 8:19 AM