Everything is going well. Kaedra is doing great. No problems at all. She is out of ICU and is on a regular floor now. She has no problems except being absolutely stir crazy in her confined area (she is MRSA positive so they won't let her play in the playroom or even leave her room). She is also getting extremely agitated when doctors or nurses approach her. I feel so bad for her. When we came in here everyone was commenting on how "good" she was and how she let them do their exams very easily. Well, after being stuck numerous times, operated on twice in two weeks and being attached to every machine in sight, she is d-o-n-e. She screams when they get near her. Flails around, kicks her feet. The whole nine yards. It doesn't even matter if they are just trying to give her a new gown!
We are still not in the Ronald McDonald house. Apparently someone dropped the ball on that one and we could have been in it this whole time. Looks like Satan owes us quite a bit of money. Have no fear, I will be calling that in. We cannot go there tonight because it is too late to cancel our hotel room. Hopefully we will be in there tomorrow night.
Yup, I said tomorrow night. Looks like we are here for a few more days. Nothing is wrong at all. Just trying to coordinate her getting a pic line (don't know how to spell that?) which they are going to do under sedation in radiology tomorrow sometime and then Pulmonology wants to see her again on Thursday to see how she is doing off of the vent. UGH. We are trying to fight that one and tell them we will just see our pulmonologist in Tulsa. If we can't get that done, we may not be out of here until Friday, depending on what time Pulmonology sees us on Thursday.
Everything is going very well. However, I am struggling to keep my joy. I guess the biggest prayer we need now is for me to keep my faith in The Word rather than what I hear. I am tired of trying to keep Kaedra, Michael, and Ethan happy. Prayers for getting out of here sooner, rather than later, would be great too. We still REALLY want to leave tomorrow. I am also frustrated with the fact that the infectious disease people want to see us up here quite frequently for the next 6 months. I know that they know we are 4 hours away, but they say they really need to see her and they will stretch it out as long between visits as possible. We are praying that they will let us see someone in Tulsa but so far, no go.
Once more, I want to say that I Praise God for how well everything is going. It really is. Satan keeps trying to throw us zingers but I know who my faith is in. They even let us take Ethan into ICU!! Thank you all for your prayers concerning that!
Thank you all!