Good news!!! Today when we called to make sure we were getting more penicillin delivered, the delivery company said they had found a better pump for her. WOOHOO!! They did a great job!
Here is the old pump system and the purse she had to wear or drag around all the time:
Here is the new system. We can put it in a little mesh bag they brought, too, and clip it to her clothes. (although if she does end up staying on this, I will probably crochet her a little bag)
Check out the difference:
I am so happy for her!! This is SO much easier!
We go to the Infectious Disease Doc tomorrow and we are still praying that he will say that the penicillin is not needed. Unfortunately, Kaedy is having some tummy problem with the penicillin and is not digesting her food. If he does want to keep us on the penicillin, she will have to go on another med to help her digest the food. For now we are feeding her pediasure 24 hours a day again. With no nurse tonight, you now know why I am staying up late. Might as well get another feed in before I head to